Asa Jay's weblog

Back in September, I wasn’t so sure Christmas was going to be a great affair this year. Sam was in the hospital undergoing surgery to bring his small intestine out to an ostomy bag. That was four months ago. Today, we have a happy six year old, still with Autism, but in much better shape, better mood, more exciting than ever before. Even though the economy is slim and we couldn’t afford much, we’ve had a great Christmas.

Nothing could have been better, than to have Sam around. From my point of view, it was also very nice to have Shelley here. The three of us make a family and Christmas is best spent with family and friends, but mostly family. Just being with each other, to see the smiles on faces, to get the hugs and the thank yous. I think that’s all I needed, even though gift giving did come in to play.

Shelley budgeted a very small amount this year which meant we were -not- spending a lot on anyone. We focused on Sam since he’ll only be a little boy once. Thankfully, probably due to our faith, we had some other things come our way to really round things out. First, we had some generous donations that helped defray a small portion of our medical bills. That was very nice. Second, we had some donations of extra gifts that really made Sam’s Christmas more special.

Christmas eve we went to our church and watched the small service. Some friends of ours played or sang, the service was narrowly focused, well timed and a pleasure to be in. We came home, had a little dessert and went to bed. Sometime during the night, Santa made a visit and deposited a few gifts for Sam under the tree. Unlike most kids though, Sam wasn’t really aware on Christmas morning until we pointed it out to him.

Sam’s Autistic day started like any other, he wanted breakfast and to get dressed. That just wouldn’t do for mommy though, so she pointed out this was Christmas, and tried to probe Sam for anything he might remember about the day. Well, at some point he found some new unwrapped gifts under the tree; suddenly it was “hurry mommy, I have to have breakfast -quick-!” It was a smiling moment for certain.

Since the operation, Sam has been a much more energetic boy. Although it took some getting used to the Ostomy system, we are all past that now as we help him every day. Sam is also coming along in his understanding of how it works and is helping when he can, in the capacity that he can. I have confidence that if this becomes a life long thing for him, he’ll deal with it very well. I still pray he will heal and therapy can help him so he can have this reversed and be more like the normal kids. If you feel compelled, we still have the donation link available and appreciate all donations to help pay for Sam’s medical bills.

It was also a beautiful day here with the sun shining and temps in the low 30’s. We didn’t get snow this year, but then again there are plenty of people who are glad about that. Last year we set a record for snowfall, with the overwhelming majority of it coming in just two days. Can you imagine nearly six feet of snow inside of a week? It was something to behold.

So we didn’t have a white Christmas, but we did have a nice family Christmas and that’s one of the things it’s all about.

Asa Jay

The last several months have brought about a lot of harsh and bitterly opposed viewpoints on health care. There seem to be no end to the claims on both sides of the argument that their side is the better way to go, the better way “for the people” of the U.S. Unfortunately, I believe all this has led to a shutdown of reasonable discourse on the subject, resulting in an abstraction of the real problems and the inference of band-aid solutions (with apologies to the Band-Aid brand).

So what is the reasonable course? Is the system broken? Is it hard to get health care? Is there no access to health care? What happens if I need health care? I may not have all the answers, but my family has been using health care for some time.

Most recently, as evidenced by my last post, my family had to avail itself of the health care system in a major way. Sam spent nearly two weeks in the hospital and came home with a life changing operation. There is nothing like a direct experience to help a person understand what is at stake in the health care debate. This is my point of view, a first person perspective mingled with cautious thought. Personally, I don’t think our system is -that- broken.

I’ve always maintained a view that I’m okay paying for services that I know I’m paying for. You want to pick up my trash, okay, I’ll buy into that, just send me a bill every month that is commensurate with my level of garbage production. Same with electricity, water, sewage, etc. But you want to charge me a percentage of my homes estimated value to fund schools, snow plowing and other services without giving an accounting of where the money is going? I don’t think so. Or at least I can say I’m not comfortable with that; I would rather know what I’m paying for. With health care, there is a little bit of a difference in that a person can pay into an insurance program.
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Yea, I don’t post much here huh. Seems like most folks are moving to Facebook and exposing way too much of their personal lives. Some folks have managed to get themselves fired from a job or have ruined chances at getting a new job due to, shall we say, intimate details found on social networking sites. Rather than spend time in a long dissertation of the pros and cons of other social networking sites, I’ll just say I’m content with controlling all my own content, for the most part on my own domains. Occasionally something in life changes and it creates emotions, physical difficulties or other problems or concerns in life that at some point friends, neighbors and even strangers should be made aware of. That kind of change came to my family recently.

For those who have followed this blog and not died of starvation, will recall my son Samuel was born with a condition called Hirschsprungs disease. To recap, he had two surgeries to correct a problem in his colon. Well, a new problem possibly related (or not) to this disease came up recently. Sam had been admitted to Hospital twice in the past few years for a distended abdomen. Basically his guts blew up like a balloon and he couldn’t get the gas out. Not being constipation we were confused as were the doctors. This last few weeks however have changed all that and resulted in another surgery.

Sam was again admitted recently, twice in two weeks. His original surgeon as well as a new Pediatric GI specialist both agreed, his colon was not working as expected. It had to come out. This was real shock to Mom, but I have to admit, I was nearly expecting it. With that kind of heartbreak sitting in our minds, the surgeon called during the surgery with what turned out to be good news.

The surgeon found that under sedation, Sam’s anus was relaxed enough to properly release the built up gas and soft stool that was blowing him up. This meant there might be a chance to save his colon but it was going to be a long haul. First, they would install an Ileostomy, bringing his small intestine outside his abdomen and he would now be pooping in a bag. Next, after some months of recovery, we will have to perform dilitation on his anus. Sounds lovely doesn’t it. This means we’ll have to insert increasing size rods in his anus to help the muscle expand -and- get him used to object passing through.

Next we’ll continue anal conditioning by putting him through some biofeedback session to help him understand how his back door works. Eventually, we hope to hook him back up so he functions normally, with stool coming out the anus rather than out his belly. Until then, we have a huge paradigm change.

Dealing with an Ileostomy is not easy. We now have to empty this bag hanging on his abdomen several times a day. The bag must be changed every one to four days. This means we have to buy these necessary bags, classified as medical appliances, and other supplies to support our son pooping in a different way.

It was initially a shocking and gut-wrenching experience. I’ve always tried to be a neat and clean person, so having to deal with someone else’s poop in addition to changing a bag on something that is outside the body that normally is found on the inside, was enough to freak me out for a day. Three days later we are beginning to deal with it better, but it’s still our little boy and it hurts to see him this way.

Prayers and good thoughts are appreciated. This condition is made all the more difficult because of his Autism, though Sam does seem to be coming to grips with the fact he has a bag for pooping now. We just pray the future is better, that we can successfully get his anus trained to pass poop, get his colon hooked back up, make sure it all works and he can lead a normal life. Until then, both Mom and I have a lot of work to do.

Thanks for listening,
Asa Jay

So it got me wondering….

Wondering what all falls under the GM brand name? How much will
shutting down Pontiac really accomplish?

This list doesn’t necessarily count all versions or sub-models of GM
products available, but it’s an impressive list.

84 models just in this list, and this doesn’t count their overseas
operations in Australia, Britain or the orient. Many of these simply
have different branding on the same basic design, but that list would be
limited. And it seems to me they’ve all become so expensive that there
really isn’t a big difference between buying a Cadillac and a Chevy
anymore. I imagine you still pay a little more, but even many of the
bottom of the line cars are as much as I paid for my first house.

84 models (not counting sub-models). I wonder how many of each they
make in a year (I’m not going to look that up), average it across all
models. How many new drivers are introduced each year? How many
drivers retire (too old or die (old or young)) each year? How many
older cars are retired each year (scrapped or otherwise unusable)? Does
the production of just this one manufacturer supply enough to cover all
those conditions? Oh yea… probably so, but I don’t know for certain.
Now multiple this by: Ford, Chrysler, Toyota, Honda, Nissan……. I
think you get the idea.

To me, rail against unions as I might in some circles… this smacks of
corporate and shareholder greed more than anything else…. too many
models, too much diversity, too much dilution of product lines, and
over-saturating the market. I don’t know how to fix it, but I tell you
what I think….. if GM ends up in Bankruptcy, I see a few gems in here
that a third party could probably pick up, and if trimmed right and
managed right… could become a strong brand on it’s own. Same story
for Chrysler. What I mean by trimming, is removing some models from a
lineup, not nuking the entire brand.

Here is the list:
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Two and a half years of school has left me a little out of the loop. I knew the BBC was producing a new Doctor Who series but two things prevented me from getting involved. The first was the fact it makes it to the United States late, and the second was that I was I still in school. Be that as it may, a friend at work has allowed me to watch a copy, starting from the beginning. Tonight, I just finished the first two episodes and I am suitably impressed.

It’s been some 20 plus years since I was first introduced to The Doctor. My first experience was in tech school with the Air Force, while stationed at Keesler AFB in Mississippi. One late night surfing through the channels on the television in the day room, I stumbled across this odd English program with a frightened young girl and a curly haired tall man in a long coat and even longer scarf. It looked sci-fi so it intrigued me. The episode was “The Brain of Mobius” or something like that (I don’t really follow these that close), and it ran uninterrupted. Even at the end of the show, I didn’t really understand what I had seen.

The acting was alright, the sets seemed a bit cheesy but the back story was intriguing. Who was this doctor person, and what was the relationship to this Sara Jane Smith person? Well, I didn’t manage to catch any more episodes there but once I got back home, I found this show called Doctor Who on the local PBS station, and it all became clear. I then followed it through the next two Doctors and it faded away. For almost any sci-fi fan, the resurrection of Doctor Who is almost a watershed event.

Tonight as I watched, I found myself engrossed in the same old, but familiar theme. Having only watched the first two episodes I can at least say it was certainly made for old fans. We get a passing quip from the new Doctor as he passes a mirror and comments on his new appearance. We don’t really know what his very last appearance was but he seems to be okay with his new look. This of course plays on the fans knowledge that The Doctor regenerates. Something else the fans knew about, was the TARDIS. Read the rest of this entry »